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CONDITIONS AND DISEASES PIERRE ROBIN SYNDROME
Top -> Health -> Conditions and Diseases -> Rare Disorders -> Pierre Robin Syndrome (4)
Contact a Family: Pierre Robin Syndrome
Main features of the condition and possible causes.
www.cafamily.org.uk
Main features of the condition and possible causes.
www.cafamily.org.uk
NORD - Pierre Robin Syndrome
Sample report, plus links to organisations. [Fee required for full report]
www.rarediseases.org
Sample report, plus links to organisations. [Fee required for full report]
www.rarediseases.org
Chase's Story
Personal account of one child's experience of this condition. Includes photographs.
www.pierrerobin.com
Personal account of one child's experience of this condition. Includes photographs.
www.pierrerobin.com
Pierre Robin Network
Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.
www.pierrerobin.org
Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.
www.pierrerobin.org
